randomling: A wombat. (Default)
[personal profile] randomling
Making a rare public post. And a rare post, come tot hat.

Like most everyone I've seen post anything on the internet today, I am shocked, I am angry, I am horrified and terrified. I think we need community more than ever. I sure as hell do.

[personal profile] kaberett is holding a very timely love meme. My thread is here, or will be when it's unscreened. I'll try to keep up, but feel free to link me to yours in the comments.

Given that I'm not the only person who's wondering how the hell to make a difference on low-to-no-spoons in this increasingly shitty climate, I've been wondering how to organise that. Because of spoon and brain reasons (I'm not a very steady person, I tend to come and go with interests and I sort of need advance permission to burn out and disappear for large chunks of time) I'd need a co-mod or three and probably some discussion about how to set it up and what we might want to do. I'm thinking of a name like spoonless_activists or something?

The problem with being disabled is we often don't have the spare resources to spend on the stuff that might change the world. But maybe if we organise we could do... something? Even if it becomes a place to signal-boost petitions, fundraisers and community events and nothing more, that's a start. And maybe we can find something to do with it.

What do you think, people? Anyone want to join this effort or have any ideas?

Date: 2016-11-10 01:18 am (UTC)
lannamichaels: Astronaut Dale Gardner holds up For Sale sign after EVA. (Default)
From: [personal profile] lannamichaels
What do you think, people? Anyone want to join this effort or have any ideas?

Would love to join the effort, but alas, don't have ideas

Date: 2016-11-10 02:53 am (UTC)
syntaxofthings: Death Fae from the Fey Tarot (Default)
From: [personal profile] syntaxofthings

I have more thoughts that at some point I'll get to you in private.

Date: 2016-11-10 03:21 am (UTC)
the_rck: (Default)
From: [personal profile] the_rck
I know I want something I can do, but I've been at a loss as to what. I have trouble leaving the house (agoraphobia). I can't make phone calls because they wreck me. I can't drive, and I can't walk very far at all. I have very little money to give, and what I have I tend to aim at the local food bank or at things for my daughter's school.

Date: 2016-11-10 12:03 pm (UTC)
rmc28: Rachel smiling against background of trees, with newly-cut short hair (Default)
From: [personal profile] rmc28
I think there have got to be things you can do by online communication alone, as and when you can, and I am personally very interested in finding/building systems that allow people to do so.

I'm thinking:
* helping moderate a community
* organising a community to-do list, and a resource list
* researching existing organisations and models that work well for distributed online contributers (e.g. DW contributers?)
* working up to the kind of things mentioned by [personal profile] davidgillon: research and analysis and written communications

I sort of want a system where people can come and see a list of things they can do, with an estimate of task size, and pick something up and do it. But one of the things to do is keeping that list / estimate up to date, and breaking down tasks into small chunks that can be done ...

Date: 2016-11-10 11:35 pm (UTC)
green_knight: (Activism)
From: [personal profile] green_knight
That sounds like a call for a project manager and a good online project management system...

(I, too, am looking for things to do, and a distributed system where I could work as much as I have time/spoons for without letting people down would be ideal.)

Date: 2016-11-10 08:07 pm (UTC)
cesy: "Cesy" - An old-fashioned quill and ink (Default)
From: [personal profile] cesy
If you have time to spend online and are happy to either write emails to strangers or learn/do coding, there will be stuff. I have a recent example - our local Refugees Welcome group desperately needed a few people to help answer emails and manage our facebook and twitter. You don't actually need to be in our location for that, just learn the stock answers and email someone for help when you hit a complex one. We've currently got more volunteers than I have time to reply to, but there will be others like that. If you or one of the other commenters here prods me in a few days when I'll have holiday and spare time to think, I'll probably be able to come up with existing organisations to help you connect with groups like that.

Also, creating art is an important act in and of itself, if that's one of your things.

Date: 2016-11-11 04:04 pm (UTC)
the_rck: (Default)
From: [personal profile] the_rck
I'm willing to write emails. I'm not sure about coding because the last time I did anything similar was 1983, high school, programming in Basic on a Commodore 64.

I hesitate to commit to anything big because that can wreck me.

Date: 2016-11-10 05:06 am (UTC)
alatefeline: Painting of a cat asleep on a book. (Default)
From: [personal profile] alatefeline
I think that sounds like a good idea. I don't know how to moderate a DW commmunity, but if someone can teach me I can commit to at least a day a week. Maybe more, but I don't want to overcommit.

Date: 2016-11-15 02:24 am (UTC)
alatefeline: Painting of a cat asleep on a book. (Default)
From: [personal profile] alatefeline
Yay! Okay, what's next!

Date: 2016-11-10 06:41 am (UTC)
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
From: [personal profile] davidgillon
The UK experience might offer some insights. Most of my disabled friends were fairly apolitical until near the end of the last Labour government, when we realised how bad the new Work Capability Assessment was. Then under the Tories things got rapidly worse, with a calculated plan to paint disabled people as lazy scroungers, and pretty much all of us radicalized.

The more active types formed Disabled People Against the Cuts and protested on the streets. The spoonies, my people, went the web route. There were a couple of blogs/news sites which formed, and which became fairly influential, in documenting what was going on, analysing the reality, and reporting lived experience of harassment and the like. We started to get journalists following what we did, and recycling our news into national media. In some cases we were invited onto national media, and we even had government ministers refusing to appear opposite some of our spokespeople. There were also a small group of journalists who were themselves disabled, and working on social stuff and who were very useful links.

A second prong was analysis of government data to show the reality. The 'Spartacus Report' showed that the government had lied in claiming that disabled people had backed their reforms in a consultation (it was actually c2000 against, 12 for). This forced the first defeat on the government in the Lords since it had taken power, though they reversed it in the Commons. They followed it with a bunch more of influential reports (it helped to have a statistician and a mathematician in the core group).

A third approach was using pro bono law firms to force Judicial Reviews on the government to rule on the legality of their policies (the sort of stuff SPLC does in the States). This has rarely stopped them dead, but has been very useful for publicity purposes, so people see what policy actually means, and very good at forcing them to produce Mark 2 versions of policy that are less offensive than the initial versions.

Another route was activism within political parties, proposing disabled friendly policies at their annual conferences, and forging links with politicians who would give us a hearing. We also had the support of several disabled members of the House of Lords who sit as independents and are acknowledged as disability experts.

It may also be necessary to target supposed ally groups. There has been a very successful campaign to shame charities involved in the government's workfare scheme. I also found it necessary to administer a public slapping to the crowdsourced campaigning group 38 Degrees, which was deliberately ignoring disability issues, even when its own processes said it should be campaigning on them as a priority.

A necessary caveat most of us have burned ourselves out, self-care is important, but burn-out is probably inevitable for a percentage of those involved, so take care of yourselves, and try to keep recruiting new blood.

Ultimately our protests haven't stopped the government, but they have ameliorated the effects, and we caused so much damage to the reputation of some of the firms involved in implementing policy at the point of delivery that one actually walked away from a contract worth hundreds of millions of pounds, because we were destroying the value of their brand.

Date: 2016-11-10 07:34 am (UTC)
mathemagicalschema: A blonde-haired boy asleep on an asteroid next to a flower. (Default)
From: [personal profile] mathemagicalschema
Thank you so much for sharing your experience. It's useful to be reminded that a coordinated attack from every possible angle is usually more effective than pursuing one approach in isolation.

Date: 2016-11-10 11:49 am (UTC)
rmc28: Rachel smiling against background of trees, with newly-cut short hair (Default)
From: [personal profile] rmc28
I am interested, both directly and because I'm interested in the meta-problem of building campaigning organisations/systems that work for people with limited and varying ability to engage, whether through disability, illness, caring responsibilities, or whatever, without burning people out. Because I am someone who can only engage in campaigning in a limited and varying way, and I can't afford to burn out.

A DW community seems like a start, a place to build up lists of resources / tasks / tools / other campaigns and organisations to learn from?

I'm willing to help as I'm able.

Date: 2016-11-15 02:28 am (UTC)
alatefeline: Painting of a cat asleep on a book. (Default)
From: [personal profile] alatefeline

One suggestion: if we can recruit enough, have redundant co-moderators on any given task and a standard form for requesting someone to cover for awhile.

There is a lot of impressively good thought here, I'll be coming back to this over and over.

Date: 2016-11-10 08:10 pm (UTC)
cesy: "Cesy" - An old-fashioned quill and ink (Default)
From: [personal profile] cesy
I'm keen to help and talk more about this topic. It would be great to talk about how organisations can be more friendly and welcoming towards volunteers who come and go and burn out, because that's more common than many people realise.

Date: 2016-11-11 12:53 am (UTC)
alexseanchai: Blue and purple lightning (Default)
From: [personal profile] alexseanchai
Yes nod

Date: 2016-11-11 12:53 am (UTC)
alexseanchai: Blue and purple lightning (Default)
From: [personal profile] alexseanchai
I'm idea-less but in.

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